Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Research Studies
Research Study for Mothers of Blind Children
A graduate student in the Genetic Counseling Program at Brandeis University is looking for mothers to participate in a research study designed to explore how a mother feels while bonding...
Eye Conditions and Syndromes
Mrs. America Raises Awareness About Retinitis Pigmentosa
Watch this video with Mrs America on Fox News. She talks about RP and LCA and explains how we can help support exciting new research that may cure these diseases.
Eye Conditions and Syndromes
Q&A with Ocularist Walter T. Tillman
Walter Tillman is an ocularist in Ocularist Pittsburgh. He talks about how he assesses children with anophthalmia/microphthalmia, how to choose conformers or prosthetics, and possible surgical options.
Eye Conditions and Syndromes, Visual Impairment
A Letter to New Parents Living with Microphthalmia
Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low...
Eye Conditions and Syndromes, Visual Impairment
Ask the TVI about Anophthalmia and Microphthalmia
TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.
Eye Conditions and Syndromes, Visual Impairment
Ella’s Story: Raising a Child with Bilateral Anophthalmia
Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.
Eye Conditions and Syndromes, Visual Impairment
An Interview with John Pitzen about Bilateral Anophthalmia
MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.
Eye Conditions and Syndromes, Visual Impairment
Our Journey with Microphthalmia
Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.
Eye Conditions and Syndromes, Visual Impairment
Your Baby has Anophthalmia
Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same...
Eye Conditions and Syndromes, Visual Impairment
Dear parents of young children with LCA
Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Frank wants other parents to understand that the sky is the limit for kids with...
Health & Nutrition
Quick View Medical Records
Learn how to create a Quick View for your child's medical records. The concept is to create a one-page visual aid that you can give to medical professionals.
Eye Conditions and Syndromes
New Treatment for LCA in Early Development
Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.
Eye Conditions and Syndromes
American Society of Ocularists
The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).
Eye Conditions and Syndromes
Aniridia Foundation International
aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...
Feeding and Eating
My Plate-Mate Adaptive Feeding Aid
My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...