Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Eye Conditions and Syndromes, Visual Impairment
Ella’s Story: Raising a Child with Bilateral Anophthalmia
Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.
Eye Conditions and Syndromes, Visual Impairment
An Interview with John Pitzen about Bilateral Anophthalmia
MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.
Eye Conditions and Syndromes, Visual Impairment
Our Journey with Microphthalmia
Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.
Eye Conditions and Syndromes, Visual Impairment
Your Baby has Anophthalmia
Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same...
Eye Conditions and Syndromes, Visual Impairment
Dear parents of young children with LCA
Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Frank wants other parents to understand that the sky is the limit for kids with...
Health & Nutrition
Quick View Medical Records
Learn how to create a Quick View for your child's medical records. The concept is to create a one-page visual aid that you can give to medical professionals.
Eye Conditions and Syndromes
New Treatment for LCA in Early Development
Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.
Eye Conditions and Syndromes
American Society of Ocularists
The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).
Eye Conditions and Syndromes
Aniridia Foundation International
aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...
Feeding and Eating
My Plate-Mate Adaptive Feeding Aid
My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...
Eye Conditions and Syndromes
Achromatopisia Network
An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
Eye Conditions and Syndromes
Stickler Syndrome
The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...
Health & Nutrition
OMIM: Searchable Database of Genetic Disorders
Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.
Health & Nutrition
National Organization for Rare Diseases (NORD)
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Eye Conditions and Syndromes, Health & Nutrition
Japanese Researchers Grow a Retina in a Test Tube
Japanese researchers have used embryonic stem cells to grow retinas in a test tube.
Eye Conditions and Syndromes, Health & Nutrition
More Artificial Retina News
Europe has just approved a device developed by Second Sight Medical and they are working on getting FDA approval in the US.
Eye Conditions and Syndromes
Digital Journal of Ophthalmology
The DJO is a premier, peer-reviewed ophthalmic journal dedicated to the dissemination of information over the World Wide Web.
Eye Conditions and Syndromes
The Association for Retinopathy of Prematurity and Related Diseases (ROPARD)
ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.
Eye Conditions and Syndromes
Macular Degeneration Foundation
The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.
Eye Conditions and Syndromes
National Consortium on Deaf-Blindness (DB-Link)
NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.
Eye Conditions and Syndromes
American Nystagmus Network
The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.
Feeding and Eating
Teaching the Whole Concept: Learning about where our food comes from
Learning whole concepts can be difficult and take some time for children with vision impairments. Rather than trying to teach everything at once, give your child time to explore his...
Eye Conditions and Syndromes, Visual Impairment
Can I get an eye transplant for my blind child?
Sarah J. Blake discusses the use of the term "transplant" in speaking about eyes. She explains what is and is not possible and provides some clear explanation of how corneas...
Eye Conditions and Syndromes
Rods & Cones Transplanted through Stem Cells
Following the successful transplantation of cone cells, a research team from University College London has successfully transplanted rod cells, essential for peripheral and night vision. Cells were injected directly into...