Eye Conditions and Syndromes
Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.
Eye Conditions and Syndromes, Health & Nutrition
Retinal Implants and Visual Cortex Plasticity
The Boston Retinal Implant Project unveiled a prototype prosthetic for people with retinitis pigmentosa (RP) and macular degeneration. This post links to a New York Times article which also discusses...
Eye Conditions and Syndromes, Health & Nutrition
Tooth Implant Restores Sight
An innovation in lens surgery uses a patient’s tooth to hold an optical lens in place. Within 2 weeks of completing the entire procedure, Martin Jones of England was able...
Eye Conditions and Syndromes, Health & Nutrition
BrainPort Allows Blind Users to “See” Through Their Tongue
BrainPort Vision is a prosthetic device that uses electrical stimulation of the tongue to provide spatial information to users who are blind or who have vision limited to light perception....
Eye Conditions and Syndromes
Glaucoma Service Foundation to Prevent Blindness
The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.
Eye Conditions and Syndromes
A-Z to Deafblindness
This site offers help to deafblind people, those who provide specialized services for those who are deafblind and to make people more aware about deafblindness.
Eye Conditions and Syndromes
The National Organization for Albinism and Hypopigmentation (NOAH)
Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.
Eye Conditions and Syndromes, Visual Impairment
Raising a Blind Child with Albinism
Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.
Eye Conditions and Syndromes
DeafBlind Fact Sheets
This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.
Eye Conditions and Syndromes, Visual Impairment
Tacey’s Story: Surviving Retinoblastoma
Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.
Eye Conditions and Syndromes
What’s an ERG?
If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in...
Eye Conditions and Syndromes, Visual Impairment
LCA and Education
How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.