Eye Conditions and Syndromes
Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.
Eye Conditions and Syndromes
The Association for Retinopathy of Prematurity and Related Diseases (ROPARD)
ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.
Eye Conditions and Syndromes
Macular Degeneration Foundation
The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.
Eye Conditions and Syndromes
National Consortium on Deaf-Blindness (DB-Link)
NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.
Eye Conditions and Syndromes
American Nystagmus Network
The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.
Eye Conditions and Syndromes, Visual Impairment
Can I get an eye transplant for my blind child?
Sarah J. Blake discusses the use of the term "transplant" in speaking about eyes. She explains what is and is not possible and provides some clear explanation of how corneas...
Eye Conditions and Syndromes
Rods & Cones Transplanted through Stem Cells
Following the successful transplantation of cone cells, a research team from University College London has successfully transplanted rod cells, essential for peripheral and night vision. Cells were injected directly into...
Eye Conditions and Syndromes
The Bio-Retina
NanoRetina of Israel has developed a bionic retinal implant to replace natural photoreceptors, and expects to begin testing within the U.S. in 2013.
Eye Conditions and Syndromes
LCA and Kidney Health
LCA can sometimes be associated with kidney disorders. We've put together a list of tests that should make sure you or your child's kidneys are in perfect working order.
Eye Conditions and Syndromes
CHARGE Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.
Eye Conditions and Syndromes
The Glaucoma Foundation
The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.
Eye Conditions and Syndromes
ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)
FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.
Eye Conditions and Syndromes
Stargardts Disease
Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who...
Eye Conditions and Syndromes
The United Mitochondrial Disease Foundation
United Mitochondrial Disease Foundation's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Eye Conditions and Syndromes, Visual Impairment
What’s genetic testing for LCA?
If you are considering genetic testing to determine the gene causing your child's LCA, you probably have lots of questions about the test as well as the results. We'll try...
Eye Conditions and Syndromes
What are Ciliopathies and How are they Related to Blindness?
The source of retinal pathologies like that associated with Joubert's Syndrome may originate in the cilia of cells. Scientists at UC-San Diego report their findings in this Health Sciences update.