Eye Conditions and Syndromes

Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.

Jacalyn

Eye Conditions and Syndromes, Visual Impairment

A Letter to New Parents Living with Microphthalmia

Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low...

Q & A

Eye Conditions and Syndromes, Visual Impairment

Ask the TVI about Anophthalmia and Microphthalmia

TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.

Ella with her first pair of blue prostheic eyes

Eye Conditions and Syndromes, Visual Impairment

Ella’s Story: Raising a Child with Bilateral Anophthalmia

Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.

John Pitzen holding Ella

Eye Conditions and Syndromes, Visual Impairment

An Interview with John Pitzen about Bilateral Anophthalmia

MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.

AJ

Eye Conditions and Syndromes, Visual Impairment

Our Journey with Microphthalmia

Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.

Ivey

Eye Conditions and Syndromes, Visual Impairment

Your Baby has Anophthalmia

Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same...

Skylar Covich

Eye Conditions and Syndromes, Visual Impairment

Dear parents of young children with LCA

Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Frank wants other parents to understand that the sky is the limit for kids with...

pills

Eye Conditions and Syndromes

New Treatment for LCA in Early Development

Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.

Eye doctor illustration

Eye Conditions and Syndromes

American Society of Ocularists

The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).

Aniridia Foundation International members

Eye Conditions and Syndromes

Aniridia Foundation International

aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...

eye and light

Eye Conditions and Syndromes

Achromatopisia Network

An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.

Stickler Syndrome logo

Eye Conditions and Syndromes

Stickler Syndrome

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...

Retina in a test tube

Eye Conditions and Syndromes, Health & Nutrition

Japanese Researchers Grow a Retina in a Test Tube

Japanese researchers have used embryonic stem cells to grow retinas in a test tube.

Artificial retina

Eye Conditions and Syndromes, Health & Nutrition

More Artificial Retina News

Europe has just approved a device developed by Second Sight Medical and they are working on getting FDA approval in the US.

DJO

Eye Conditions and Syndromes

Digital Journal of Ophthalmology

The DJO is a premier, peer-reviewed ophthalmic journal dedicated to the dissemination of information over the World Wide Web.