Eye Conditions and Syndromes
Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.
Eye Conditions and Syndromes
CVI on APH: The Conversation Continues
A resource for research articles, books, websites, blogs, strategies and support for parents of children diagnosed with Cortical Visual Impairment (CVI).
Eye Conditions and Syndromes
New Gene for LCA Discovered, PNPLA6
The discovery of a new genetic mutation on an already known gene could lead to treatments of genetic blindness in children with LCA.
Eye Conditions and Syndromes
Creating a new Scleral Shell at the Ocularist
This cool video shows how easy it is to create a new scleral shell and how easy it is to be the patient, too!
Assistive Technology, Eye Conditions and Syndromes
New Gadget Addresses Tunnel Vision
There's a company that's working on a visor to help those with tunnel vision to see the full picture of what they could see without tunnel vision. It's still in...
Eye Conditions and Syndromes
Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa
Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in...
Eye Conditions and Syndromes
More News on Stem Cells and Blindness
Scientists in the UK have discovered a cache of stem cells in the eye that could lead to reversing blindness for those with age-related macular degeneration and retinitis pigmentosa. It's...
Eye Conditions and Syndromes
Gene therapy research for childhood blindness gets a boost from Genzyme
LCA-1 research is getting a boost from Genzyme with a $900,000 grant to pursue gene therapy. Dr. Shannon Boye has had success with animals in the lab and is looking...
Eye Conditions and Syndromes
First Human Trial for Macular Degeneration
The first human trials in using home-grown stem cells to treat age-related macular degeneration took place recently in Japan. This could be a breakthrough for other therapies involving stem cells...
Eye Conditions and Syndromes
Next Step for Macular Degeneration: Human Trials
A Japanese ophthalmologist has invented a way to use adult stem cells to replace the base layer of the retina and improve the sight of those with age-related macular degeneration.
Eye Conditions and Syndromes
A Board Book Showing Kids Wearing Glasses
This board book, titled "Glasses," features very young children wearing real glasses. A great first picture book for kids who wear glasses and want to see other kids like themselves.
Eye Conditions and Syndromes
11 Super Fun Patching Resources to Make Patching Easy!
Patching can be a chore and a challenge, but if you keep it light and fun, you'll get through it. Here are our favorite patching resources that will make patching...
Eye Conditions and Syndromes
CVI Teacher: Sharing Ideas About Cortical Visual Impairment
This blog on educational information around Cortical Visual Impairment is written by a Teacher of the Visually Impaired with a specialty in CVI.
Eye Conditions and Syndromes
My Retina Tracker: Building a Medical Database to Find Cures
My Retina Tracker is a resource from the Foundation Fighting Blindness that lets individuals manage their information around their retina disease, while researchers can curate the information to further treatment...
Eye Conditions and Syndromes
New Treatment for Leber’s Congenital Amaurosis (LCA)
Researchers are developing an oral medicine that improves visual ability in patients with LCA from the RPE65 or LRAT genes. This is very exciting news!
Eye Conditions and Syndromes
A Breakthrough in Growing Corneas
Researchers have figured out how to use adult stem cells to grow corneas in the lab. These can be used to treat a host of eye illnesses and injuries.