Stickler Syndrome
The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting a pen pal group for all ages.
The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting a pen pal group for all ages.
NOAH provides parents and educators of school aged children with albinism with resource information that will aid them in formulating their child’s IEP.
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference.
Future Reflections is a magazine for parents and teachers of blind children. It is published quarterly by the American Action Fund for Blind Children and Adults in partnership with the National Organization of Parents of Blind Children.
Junior Blind’s mission is helping children and adults who are blind, visually impaired or multi-disabled achieve independence.
Lighthouse International is dedicated to fighting vision loss through prevention, treatment and empowerment.
ReadBooks! is a national children’s braille literacy program encouraging families with blind children to read print/braille books together.
Formerly known as Recording for the Blind and Dyslexic, Learning Ally produces audio-format textbooks for students of all ages.
Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Hungry Fingers educational tools are designed to give visually impaired children the confidence that with poor vision, or even without sight, they can be in command of the space around them.
Bookshare is an online library of digital books for people with print disabilities. Members with visual impairments can listen to books by using a text-to-speech synthesized voice, read books in Braille, or access the material in large print.
A literacy site from Perkins and TSBVI designed to assist educators and families in their quest to provide literacy experiences for their children who are blind or visually impaired.
Founded in 1908, Prevent Blindness America is the nation’s leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight.
The Blind Childrens Center serves children from birth to school-age who are blind or severely visually impaired. The Center’s goal is to provide a comprehensive program of specialized education and training.